You And Whose Army?

You know the old adage “It is better to remain silent and be thought a fool than to open one’s mouth and remove all doubt.”.

Certainly this is a lesson that the FlaxSeedOil2 moderator would be best served learning. I’m not posting the whole response as frankly it is not worthwhile to post such poorly reasoned dribble.

“The message you sent to the group on December 24 which I didn’t post to the list and which prompted me to block any further messages from you was the one below which tells me that you don’t understand even the basic Budwig recipe for flax oil and cottage cheese.”

Oh dear. We are dealing with a bit of a serious idiot here. So 1 cup is apx the total suggested daily intake for FO/CC (1 tbsp over). I used this for convenience a rudimentary conversion would’ve made sense to most people. Also on Sandra Olson’s site she says to grind up Flax Seed over the mxture (which is not part of BP protocol but I dont think it hurts.

The real shame are those that are banned by Sandra Olson’s monopolistic draconian moderation of which I found someone else (a doctor) in short order. What if I didn’t understand the protocol? That is the whole point of a forum, to learn and share information. I suppose I am not sure what else I should’ve expected from an 85 year old who just learned about the internet a few years ago following discovering that new fangled invention called a tv. Unfortunately I would’ve benefited from interacting with the group and I know they would as well.

Clearly this woman is incapable of intelligent discourse and thereby not worth the time. Thankfully she provides no value on the forum, but instead the community does which is why I will continue to read it.

Day 18 of Budwig Protocol, but I have only been following it properly (more than 2x what I was) for about 8 days.

I feel pretty good though my right side is only now getting close to normal with the use of steroids which leaves me wondering if it is working. My intention / desire is *not* to receive anymore chemo nor get radiation but I may not have a choice. This said I am putting it off which may effect my longevity but I am just as certain that it will be affected albeit differently if I do take it.

I am told that since doing Budwig I have more energy and I look better (color in face, eyes turning bluer, etc.). I can testify that I definitely have more energy. The warbling in my ears (annoying) seems to have thankfully diminished. Unfortunately the neuropathy in the hands remain as does the occasional serious dizziness that happens when I get up (heart problems from chemo).

The only drawback in regards to Flax Seed oil is the only good resource / forum is FlaxSeedOil2 Yahoo group. I recommend it but I was banned for no reason by the moderator who seems to be a weird old bird. No matter, while I would be a valuable participant she can be world leader pretend as I long as I still get to visit and read the posts.

Well it has been a while since I’ve posted. I’ve been telling myself that it was because I wanted to collate my data / plans but in all truth its been a combination of obsessive research with depression.

Last Tuesday I was told I have 12 – 18 months to live if I took radiation which is the last option availed to me by Mayo, a clinic I hold little respect for (more on this point later).

I will go over all of the gory details later but I wanted to update with an oveview what I am pursuing:

1) Budwig Protocol
2) Low-Carb, High Fat Ketogenic Diet (having some difficulties with this one)
3) Habanero Diet (not implemented yet)
4) DCA (treatment starting this week hopefully)
5) Teeth Surgery (removal of mercury, etc. very expensive)
6) Supplements (LOTS of supplements)
7) Exercise
Foreign Clinics
9) Clinical Trials (San Fran, Boston)

I have to move quickly as the tumor is pressing on my brain causing issues with the right side of my body (I am taking steroids to temporarily suppress this).

Clearly I am desperate and I’m hitting this with all I’ve got.

I will be posting all of the things I am doing to effect my own destiny and my research as to why I am doing it (or why not).

One of the things I am doing is the Budwig Protocol. It rang valid to me for a few reasons. First, on their Yahoo group FlaxseedOil2 they have almost 100000 posts in 10 years (about 1000 posts a month). What appears to be a lot of positive testimonials from general health improvement to curing untreatable Stage 4 cancer. No profit motive – no one makes anything from this – the diet is widely known and ingredients easily obtained.

The recipe? 1/3 cup flaxseed oil and 2/3 cups cottage cheese blended thoroughly.

Before you ask, yes, it is absolutely nasty. I actually don’t think I could’ve invented a nastier tasting and less appealing food combination. There is nothing I like about it.

Luckily I figured out that I could gather a pills size of ingredients with my teeth and chase it down with tea and without tasting it which made it much easier to swallow (though I still gagged).

Here is the interesting thing. It might be psychosomatic but I felt better today, better than I have for a while. More energy, more alert… it seemed that I was breathing deeper.

I say this as someone who has started this as a skeptic – and still is, but as someone who doesn’t tend to notice subtle (and not so subtle) changes in how he is feeling but did… well that was notable in and of itself.

I’m planning on sticking with it!

Sitting in the hospital getting my 2nd chemo of my 2nd cycle. I’ve been given a 50% chance of this working though all my doctors dont have this confidence.

Which is off-putting and makes me understandably nervous.

I’ve asked several doctors what I could do to help. All of them have said, literally, there is nothing I can do but hope for the best believing in the power of positive thinking. I have some things to say about that later in that I don’t agree but I will say it cant hurt.

In the meantime I very much did not listen to what they had to say and Ive found some alternative treatment options, one of which I am following now – a low carb, high fat, low calorie diet. I cant think of a worse diet for me to be honest but the stakes are high and the research is credible. I will be posting what I am doing for the diet (and what it is and how it works) over the next few days and building up a FAQ knowledge base which I will also post.

Regardless I will be sweating bullets for the next 2 weeks until I get my MRI results. I dont think another scan showing my tumor has grown is necessarily the end of the world but it certainly isn’t good. Even if this diet is even marginally as effective as observed it should (I hope) keep the tumor at bay or (hopefully) reduce it.

Cancer is a disease of bargaining and perspective.

While a deeper explanation is certainly warranted soon lets say for now that I have brain cancer and am on my 2nd go at chemo.

A few days ago the whole right side of my body had diminished function. Mainly it was with my leg emphasized by me crashing into everything. My fine motor control was affected in both my leg and arm, more noticeable in the arm because the leg was more greatly affected. My face did not droop but my speech was impeded making me slur my words.

Internal dialog up until I checked into Mayo Emergency Room.

Whole right side of body effected.
When I first got the brain tumors the progression of loss of control was a slower progression not intant (as this was).
Heart is at half my normal refraction rate. This must be a cardiac event like a stroke.
It could also be cancer. This would be bad as my current tumor is on the right side and my right side is effected there would be a new tumor.
A day later my situation had improved and a day after that on the way to the Mayo Emergency Room (I was out of town) I became convince that it couldnt be a tumor as tumors have a way of not getting better…
I hope I had a stroke…

This is what was circulating in my head most of my waking moments during this time. I was distraught when the ER Doctor was pretty sure it was a new tumor as well when she told me tumors can wax and wane (i.e. not the behavior I expected out of tumors.

Fortunately we were both wrong. My tumor had grown slightly (about 10%) and  I had edema (swelling of the brain) which was responsible for the effects on the right side of my body (I am taking steroids for this – it is working.).

The outcome / cause was about the best thing I could hope for. Six months ago I didnt envision myself hoping I had  serious cardiac event – bargaining / convincing myself this was the case. I guess that is what you get when get brain cancer that really just seems like it doesnt want it to go away. On another day, a cardiac event would not only be most unwelcome but rather scary. Just another day for a cancer patient I guess.